Children's Tumour Foundation 'shine's a light' on neurofibromatosis

Updated July 27 2022 - 2:59am, first published June 30 2022 - 7:00pm
RUGGED UP: Brian Shaw, Jacqui Doung and Sandra Shaw outside the "Shine Dome" (Australian Academy of Science), one of many buildings that lit up around Australia in colour to promote World NF1 Day and World NF2 Awareness Day in May.

It affects one in 2000 Australians and a baby is born with it every three days but the genetic condition neurofibromatosis is remarkably little known by the public.

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